The Nick Gilbert Neurofibromatosis Research Institute (NGNRI) is the world’s first brick-and-mortar research facility solely focused on finding a cure for neurofibromatosis or NF.

Purpose

To honor the life and legacy of
Nick Gilbert by inspiring hope, driving innovation, and accelerating a cure for NF.

Maddox Gibson. Person with NF who has benign tumors growing on his eye..

Maddox Gibson

Mission

To discover and develop improved treatments for NF1 and other debilitating neuronal diseases through innovative and collaborative research that positively impacts the efforts of the entire NF1 research community.

Adam Pearson. Person with NF who has benign tumors growing on his face.

Adam Pearson

Vision

To ensure a world where everyone impacted by NF can live a healthy, hopeful and happy life.

The Approach

NGNRI combines a state-of-the-art technology platform with a unique guest researcher model. This allows researchers from around the world to launch fully supported parallel labs at NGNRI, gaining access to expert teams and advanced tools to accelerate their work without leaving their home institutions.

Contact Us

While NF1 is our primary focus, NGNRI includes related cancers and neurological disorders in its journey to find cures. Continuing Nick’s selfless commitment to help others, NGNRI always considers the patients’ interests first.